To become a participating investigator/center in the PCCR or obtain more information about becoming a participating investigator contact the PCCR system coordinator. The PCCR system coordinator is available to answer your questions and will help define your center and identify users for your center and their level of access to the registry.
The PCCR operates under an IRB-approved protocol for data collection, storage, and sharing. Investigators will need to have all of the research activities and consent forms approved by their Institutional Review Board in order to participate in the PCCR. You will receive an Investigators Manual that contains materials to assist you with your IRB submission.

An Individual interested in participating in the PCCR:
Participation in this registry is entirely voluntary. There is no charge to the subject and no compensation for participation in this study.
Individuals must be registered with a clinician at a participating center and sign an Institutional IRB approved subject informed consent form to participate in the study. To find a participating center near you, please view the list of participating centers with IRB approval or feel free to contact us (the PCCR system coordinator) for more information.
The following are eligibility criteria for this study:

• Adult individuals who have a diagnosis of pancreatic cancer.
• Individuals with a family history of pancreatic cancer defined as having two or more relatives with pancreatic cancer.
• Spouses or partners, of individuals with pancreatic cancer are eligible to participate.